I’ve just had a look back through my archives and have realised that I didn’t ever blog about a fairly major thing that happened with Elisha a couple of years ago.
From memory it all started in May 2008, when Brett and I both became concerned about Elisha’s left eye turning significantly when he was looking at close objects.
We took him to our local optometrist, who then referred us on to another optometrist and a paediatric ophthalmologist. The wait for an appointment was quite a while. I remember that we saw the optometrist first. We’d decided to take Elisha for his appointment and then to Scitech as a special treat. Well, he (the optometrist) thought he could see something wrong with Elisha’s eye, but wanted to get a closer look at it, and was going to have to dilate his pupils. We made an appointment for later in the afternoon so that we could still go to Scitech.
I remember being at Scitech, but not really being there, worrying about what it might have been there in Elisha’s eye.
Eventually we went back, Elisha had the drops put in his eyes, and we wandered around for a while waiting for them to take effect.
The optometrist had seen something.
This is what a normal retina looks like…
It is a very rare defect of the eye, called Wyburn-Mason syndrome. Basically some of the blood vessels in the eye are thicker than they should be. Most of the people we dealt with had never seen it before, only Dr Lam had, and only once. Which meant that they were all quite excited by it in some ways.
He had to have an MRI to make sure that it didn’t extend into his brain in areas that could cause problems. It does go to his brain, but not into it, or not into any problematic places.
Elisha is never going to have great vision in this eye, but is also a little short-sighted, and has had glasses since he turned four. He has also had to patch. He HATES it. H.A.T.E.S. He is like two different people. Elisha with no patch and Elisha with patch.
Last year we tried some drops instead of the patch, so that he couldn’t cheat by pulling the patch open a little bit. He ended up having a reaction to the drops, and we stopped both those and the patching for a while. When we started up again, his vision was worse than ever. He even walked into things a couple of times when we first resumed. ?As much as possible he sits in a chair and does nothing.
I feel awful making him do it, because I can see by his actions how much it upsets him. Yet, it is for his (hopefully) long term benefit that we are pursuing it. I pray with him about it, and we had a big talk about it this last week. And he actually got off his chair and did a few things…
… including taking his bowl to the kitchen! I pray and hope that the wearing of the patch will improve his vision, and also that it teaches Elisha about persevering through tough circumstances.